Autism Interview #19: Lana Grant on Advocating for Autistic Mothers

Lana Grant

Lana Grant is a specialist advisor and advocate for people with autism and their families. Lana has worked within the field of autism for nearly twenty years. Lana specializes in autism and females, particularly pregnancy and motherhood. Her book “From Here To Maternity, pregnancy and motherhood on the Autism Spectrum” was published in March 2015 by Jessica Kingsley publishers and is the only book that focuses on this issue. Lana is a trained birth partner (doula) specializing in supporting pregnant women on the autism spectrum and their partners. Lana has recently contributed to the Scottish Autism Right Click Women and Girls Programme. She is a passionate advocate for female empowerment and speaks for the NAS and other organizations about female issues. She also has a diagnosis of Asperger syndrome.

This week Lana shared with me some of her background and advocacy work for mothers on the spectrum.

Considerations for Autistic Mothers

autistic mothers

Motherhood has dominated my conscious thought lately (especially mothering infants) since the birth of my fourth child last week. Mothering a newborn brings both exceptional joys and significant challenges for neurotypical and autistic mothers alike. I hadn’t thought about the challenges unique to women on the spectrum until I interviewed Lana Grant who has written a book on this topic and consults with autistic women. She will be sharing some of her advice with us next week. Since then I’ve read more about this special stage of life and learned how it uniquely impacts women on the spectrum.

Autism Interview #18: Jeanette Purkis on Positive Autistic Identity

Jeanette Purkis

Jeanette Purkis is an Autistic author, public speaker, and self-advocate. Jeanette has worked in the Australian Public Service since 2007 and has a Masters degree in Fine Arts. She is the author of three books on Autism. Jeanette has given many presentations including at TEDxCanberra 2013 and presenting alongside Professor Temple Grandin and artist Tim Sharp in Melbourne in 2015. Jeanette facilitates an Autism women’s group and is the 2016 ACT Volunteer of the Year. This week Jeanette discussed some of her background and advocacy work and how to help individuals on the spectrum develop a positive autistic identity.

Autism Interview #17: Caroline Hearst on Neurodiversity and Autism Advocacy

Caroline HearstCaroline Hearst is an autistic autism trainer and consultant from the U.K. who runs post-diagnostic peer support groups for autistic adults. She runs Autism Matters and is the director of AutAngel, a community interest company run by and for autistic people. She also blogs about her autism perspectives at http://www.autismmatters.org.uk/blog.

 

This week Caroline shared with me her perspective on the neurodiversity movement and autism advocacy both in the United States and the United Kingdom. This interview was conducted via Skype and is transcribed below.

 

Mistakes Autism Advocates Make

autism advocacy mistakes

It’s crucial to acknowledge the voices and opinions of individuals on the spectrum and let their wisdom guide your advocacy approach. Despite our best efforts, parents can sometimes get comfortable in the daily identity of raising a child on the spectrum and forget to constantly reflect on parenting and advocacy approaches. Listening to the autistic community helps us gain our bearings and work productively to help our children develop.

Autism Interview #16: Emma Dalmayne on Neurodiverse Parenting and Autism Advocacy

Emma Dalmayne

Emma Dalmayne is an Autistic and Autism Advocate and activist from the United Kingdom who speaks out against all Autistic mistreatments. She has published several articles and books aimed at helping individuals on the spectrum, and her advocacy work has been featured in the Guardian. Emma is also a home educator to her children who are also on the Autistic spectrum.

This week Emma shared some of her background growing up on the autism spectrum, her feelings about receiving a late diagnosis, and how she advocates for others on the spectrum today.

Full-Time ABA for Toddlers? Really?

ABA for toddlers

A friend of mine recently took her autistic 7th grader to a doctor appointment. During the appointment, the developmental pediatrician told her that after observing the behavior of her other 15-month-old son whom she had also brought along, this child was also on the spectrum. The doctor went on to recommend enrollment in a full-time ABA therapy program now if she didn’t want her baby to “end up like” her older son. My friend was shocked by this news and left wondering how best to proceed. The doctor’s aggressive unofficial diagnosis and recommendations left her worried that if she didn’t follow the orders, she would be failing as a parent.

Autism Interview #15: Sarah Hendrickx on Autistic Females, Marriage, and Advocacy

Sarah Hendrickx

Sarah Hendrickx is an independent specialist consultant and trainer in Autism Spectrum Conditions. Sarah is autistic with a late diagnosis of Asperger Syndrome in her 40s. She has a lifetime of personal experience of autism, its mental and physical impact and how to live with it and shares this during training along with her professional expertise.

She travels internationally and has delivered over 1000 autism training sessions and speaks at conferences worldwide She has also worked with more than 200 autistic individuals as a coach and consultant in care, schools, relationships and employment. Sarah has written 6 books on autism and related conditions. She was featured in a BBC Horizon documentary on autism.