Autism Interview #18: Jeanette Purkis on Positive Autistic Identity

Jeanette Purkis

Jeanette Purkis is an Autistic author, public speaker, and self-advocate. Jeanette has worked in the Australian Public Service since 2007 and has a Masters degree in Fine Arts. She is the author of three books on Autism. Jeanette has given many presentations including at TEDxCanberra 2013 and presenting alongside Professor Temple Grandin and artist Tim Sharp in Melbourne in 2015. Jeanette facilitates an Autism women’s group and is the 2016 ACT Volunteer of the Year. This week Jeanette discussed some of her background and advocacy work and how to help individuals on the spectrum develop a positive autistic identity.

Autism Interview #17: Caroline Hearst on Neurodiversity and Autism Advocacy

Caroline HearstCaroline Hearst is an autistic autism trainer and consultant from the U.K. who runs post-diagnostic peer support groups for autistic adults. She runs Autism Matters and is the director of AutAngel, a community interest company run by and for autistic people. She also blogs about her autism perspectives at http://www.autismmatters.org.uk/blog.

 

This week Caroline shared with me her perspective on the neurodiversity movement and autism advocacy both in the United States and the United Kingdom. This interview was conducted via Skype and is transcribed below.

 

Mistakes Autism Advocates Make

autism advocacy mistakes

It’s crucial to acknowledge the voices and opinions of individuals on the spectrum and let their wisdom guide your advocacy approach. Despite our best efforts, parents can sometimes get comfortable in the daily identity of raising a child on the spectrum and forget to constantly reflect on parenting and advocacy approaches. Listening to the autistic community helps us gain our bearings and work productively to help our children develop.

Autism Interview #16: Emma Dalmayne on Neurodiverse Parenting and Autism Advocacy

Emma Dalmayne

Emma Dalmayne is an Autistic and Autism Advocate and activist from the United Kingdom who speaks out against all Autistic mistreatments. She has published several articles and books aimed at helping individuals on the spectrum, and her advocacy work has been featured in the Guardian. Emma is also a home educator to her children who are also on the Autistic spectrum.

This week Emma shared some of her background growing up on the autism spectrum, her feelings about receiving a late diagnosis, and how she advocates for others on the spectrum today.

Teaching Siblings of Children with Autism to be Disability Advocates

girls-946288_1280Parents want their children to grow into confident, caring, and capable adults who respect everyone, including those with disabilities. In families with a disabled sibling, parents often additionally encourage acceptance of differences in a more personal and immersive way than those without one. The challenges of devoting individual time to each child’s personal development is coupled with extraordinary opportunities to teach disability acceptance and advocacy. This article discusses the unique power siblings have as disability advocates and outlines 6 tips for helping your other children learn to advocate for their siblings and others on the spectrum.

Autism Wars: Can’t We All Just Get Along?

autism wars

Parents of autistic children are at war. Autism tends to produce polarizing supporters, perhaps because of the spectrum of symptoms. One major argument comes from parents of “higher-functioning” autistic children advocating for neurodiversity and even the perspective of embracing autism as a “gift” while parents of more severely disabled or “lower-functioning” autistic children insisting that autism is no “gift” but rather something they would shed in a second if they were given the option. Unfortunately, this debate has been as much in the public view as information about the complexities of autism itself.