Mistakes Autism Advocates Make

autism advocacy mistakes

It’s crucial to acknowledge the voices and opinions of individuals on the spectrum and let their wisdom guide your advocacy approach. Despite our best efforts, parents can sometimes get comfortable in the daily identity of raising a child on the spectrum and forget to constantly reflect on parenting and advocacy approaches. Listening to the autistic community helps us gain our bearings and work productively to help our children develop.

Autism Interview #16: Emma Dalmayne on Neurodiverse Parenting and Autism Advocacy

Emma Dalmayne

Emma Dalmayne is an Autistic and Autism Advocate and activist from the United Kingdom who speaks out against all Autistic mistreatments. She has published several articles and books aimed at helping individuals on the spectrum, and her advocacy work has been featured in the Guardian. Emma is also a home educator to her children who are also on the Autistic spectrum.

This week Emma shared some of her background growing up on the autism spectrum, her feelings about receiving a late diagnosis, and how she advocates for others on the spectrum today.

Full-Time ABA for Toddlers? Really?

ABA for toddlers

A friend of mine recently took her autistic 7th grader to a doctor appointment. During the appointment, the developmental pediatrician told her that after observing the behavior of her other 15-month-old son whom she had also brought along, this child was also on the spectrum. The doctor went on to recommend enrollment in a full-time ABA therapy program now if she didn’t want her baby to “end up like” her older son. My friend was shocked by this news and left wondering how best to proceed. The doctor’s aggressive unofficial diagnosis and recommendations left her worried that if she didn’t follow the orders, she would be failing as a parent.

Autism Interview #15: Sarah Hendrickx on Autistic Females, Marriage, and Advocacy

Sarah Hendrickx

Sarah Hendrickx is an independent specialist consultant and trainer in Autism Spectrum Conditions. Sarah is autistic with a late diagnosis of Asperger Syndrome in her 40s. She has a lifetime of personal experience of autism, its mental and physical impact and how to live with it and shares this during training along with her professional expertise.

She travels internationally and has delivered over 1000 autism training sessions and speaks at conferences worldwide She has also worked with more than 200 autistic individuals as a coach and consultant in care, schools, relationships and employment. Sarah has written 6 books on autism and related conditions. She was featured in a BBC Horizon documentary on autism.

4 Ways to Make a Parent of a Child With Autism Feel Uncomfortable

unhappy-man-1169946_1280

You’ve probably encountered a well-meaning fellow parent who tries to offer a compliment or advice about your child, but leaves you feeling uncomfortable deciding whether to ignore it or politely educate them on autism or disability advocacy. Below are some cringe-worthy situations I’ve been in and suspect other autism parent advocates may also be familiar with.

“Suffering” Parents and Dehumanizing People on the Spectrum

There is a tendency for people on the spectrum to be portrayed as burdens to their families in the media. Sometimes this is the angle of the journalist reporting a story, and other times, it comes from the voice of a parent. Sometimes this narrative can even attempt to justify parent or caregiver murder of someone on the spectrum. Unfortunately, this portrayal has damaged public perception of autistic people, and many on the spectrum have spoken out against it.