Voices From the Spectrum #33: Jay Avery Rowe on Autism Advocacy

Jay Avery is a 22-year-old, nonbinary autistic from England. Jay is currently pursuing a degree in Math and Physics while self-teaching Java programming and wildlife photography. Jay blogs about their experience on the spectrum at https://autisticality.com/. This week Jay Avery Rowe shared with us their experience growing up on the autism spectrum and how they developed a positive autistic identity.

Understanding Autism: 10 Reasons Why You Should Prioritize Autistic People in the Conversation About Autism

understanding autism

You’ll find several mentions on this website about the importance of prioritizing autistic individuals in the conversation about autism. But, like anyone, not all autistic people think and believe the same things, so why is this consultation useful? Is it necessary? Is it enough to steadfastly follow the advice of your child’s doctors and therapists? If you think this is enough, you’ll be missing the best piece of the picture to understanding autism (Notice I’m deliberately not using a puzzle piece analogy here for reasons described in this post.). And while it’s important for people to understand that people on spectrum do NOT exist solely to educate others about autism, there are nevertheless numerous autistics willing to share their knowledge in the hopes of better informing families and society about autism (and some make their living doing so). They write and speak regularly about their experiences.

Below are 10 reasons why you should engage with autistic individuals and include them in the conversation about autism (identifying symptoms, useful therapies, supports, describing personal experiences, and how it should be addressed in society).

The One Thing We Shouldn’t Tell Children with Autism

This post was originally published on Amy Gravino’s blog on February 28, 2016. Amy Gravino is a Certified Autism Specialist, author, autism consultant, and public speaker. She runs a private consulting business in New Jersey called A.S.C.O.T. Coaching. She is an autism consultant and college coach for individuals on the spectrum and also advocates for autistics through her work as a member of Autism Speaks’ Awareness Committee and the Self-Advocate Advisory Board for the Daniel Jordan Fiddle Foundation. Amy speaks regularly about autism and sexuality and has written a book relevant to this under-addressed topic, a memoir titled The Naughty Autie.

April is Autism Acceptance Month

This is a reposting originally published on this blog last year.

April is autism awareness month and autism acceptance month. There are a variety of different ways people can celebrate this designation. I’ve written an earlier post on autism acceptance, so I thought I would take some time here to aggregate information available from people on the spectrum regarding their views on autism awareness month.

Voices From the Spectrum #31: Jesse Saperstein and the College Experience

 

Jesse Saperstein is a best-selling author, autism advocate, and motivational speaker. He currently serves as the Activities & Media Liaison for the College Experience, a program helping students with disabilities attend adaptive college programs and learn to live independently. The College Experience is currently trying to raise money by the end of the month to earn a permanent partnership with the Global Giving Foundation. You can read more about the campaign (and help them reach their fundraising goal!) by visiting the Global Giving website.

This is the first part of a 2-part blog post covering Jesse’s opinions and experience regarding a variety of issues affecting individuals on the spectrum. This week he shared how his college experience differed from the one he currently advocates for as well as some general misconceptions about autism he has encountered.

Lisa Jo Rudy on Making Museums Autism-Friendly

Lisa Jo Rudy

Lisa Jo Rudy is a writer, editor, and autism consultant. She provides consulting and presentations on community inclusion and education for museums, community groups, and parent groups. She developed the website autisminthemuseum.org, a hub of best practices and resources about how to make museums, zoos, aquariums, and other educational settings more inclusive for individuals on the spectrum and their families. This week she shared some of her background with museums, her perspective on their importance, and her mission to make them more accessible to individuals on the spectrum.

He Doesn’t Look Autistic to Me

The following post was originally published on the blog Life with Aspergers on March 4, 2017. It was written by Gavin Bollard and has been reprinted here with his permission.

 

He doesn’t look autistic to me… 

It’s a phrase that every parent of a child on the autism spectrum dreads. Apparently it’s meant as a compliment but in reality it’s a fairly impressive bit of “multiple insulting“.

Parent Interview: “It’s Not About Turning Him Into Someone Else.” Jim Hines on Supporting His Autistic Son

Jim Hines

Jim C. Hines is the author of twelve fantasy novels, including the Magic ex Libris series, the Princess series of fairy tale retellings, the humorous Goblin Quest trilogy, and the Fable Legends tie-in Blood of Heroes. He’s an active blogger, and won the 2012 Hugo Award for Best Fan Writer. This week he shared his experience as a parent of an 11-year-old on the autism spectrum.Jim reveals some of the ways he has learned to help his son develop his own unique identity.

Voices From the Spectrum #30: Daniel Wendler on Socialization

Daniel Wendler

Daniel Wendler is an author, public speaker, and advocate for people that (like him) are on the autism spectrum. He’s spoken about autism and social skills at conferences around the country, and is the author of a variety of social skills guides including Improve Your Social Skills. This week Daniel shared his advice for parents trying to support their autistic children both at home and in school.